On June 24th, 2014 the U.S. House passed HR 1281, a bill that nationalizes newborn genetic screening without consent. It passed on a voice vote without a roll call or amendments.
HR 1281 may be the most blatant government intrusion into individual privacy in United States history. It gives the government rights to our most private property, our personal information, without consent.
Folks, this is the definition of governance by force. And the fact that this healthcare bill was sent to the Energy and Commerce Committee instead of a committee with a more fitting title tells us that this is legislation is set up to pass with biased special interest support.
Here is a short list of major problems with HR 1281 that should send shivers down your spine:
1) No Consent Requirement.
2) Long-Term Surveillance.
3) Nationalized Newborn Screening.
4) Intrusive Labeling, Profiling and Sharing.
5) Genetic Research on Newborns.
6) Genetic Testing of Newborns for Conditions Not Yet Determined Appropriate for Newborn Screening.
7) $99.5 Million Price Tag.
(Read more alert)
“Rhode Island’s proposed early learning data system will be linked to both the state’s K-12 data system and to the state’s universal newborn screening and health data system, helping to identify children with high needs, track participation in programs, and track children’s development and learning.”
How is this possible, you ask? Well, Federal privacy laws (FERPA) were changed via executive orders during the Benghazi dust-up to allow the government to share and sell our children’s data, not only to other government entities, but private domestic and international education firms.
And that goes hand in hand with what us parents involved in the education community have been cautioning; The Obama Administrations Early Education Initiative isn’t just P-20 (that’s “P” for prenatal), but connected to the government healthcare Octopus in data sharing.
HB 1281 must be stopped. We cannot allow this atrocity to become law at the stroke of a pen and a voice vote. It is clear that the voices of reason are few and faint in Washington. We, the people, must get involved and write, shout, or send a pigeon, that our private information is not the property of the government.
This is election year. Let your congressman know you are watching their actions and demand they oppose HB1281, or face consequences.
This bill isn’t just Washington stupidity. It’s criminal.